Under my Citizen Service Number (BSN), my personal data, medical records, and other personal and administrative information have been used, modified, processed, and shared for over 32 years without my explicit consent.
Self-Sufficiency and Mental State
I am fully self-sufficient, have no debts, do not cause any public nuisance, and am not a confused person. I am by no means vulnerable and fully compos mentis. I have no psychiatric history and do not suffer from any psychological or psychiatric disorders. I have never been a danger to myself or others, and I am not now.
Medical Status
My neuropsychological examination, brain MRI and EEG show no abnormalities; no brain damage has been detected. I have chronic invisible physical impairments, but I function fully independently.
Legal and Factual Status
I am not covered by the Participation Act (Participatiewet), Social Support Act (Wmo), Long-Term Care Act (WLZ), or the Mental Health Care Act (WvGGZ). Since 2012, I have been fully entitled under WIA, and since 2018, fully IVA-entitled, confirming that I function independently and am legally competent. I have an unblemished record in all respects and do not fall under any category of vulnerable persons. There is no legal, medical, or social reason for any restriction of my rights, denial of access, or discriminatory treatment regarding my report.
BSN and Records
My BSN is linked to various systems and records, despite my full self-sufficiency and never having given consent for the use of my data. I demand that my BSN be urgently disconnected from all systems and that my records be corrected and deleted so that I can receive appropriate follow-up care and that my records fully reflect the truth.
Factual Medical Explanation
I am a survivor of Waterhouse–Friderichsen syndrome (WFS), a very rare and life-threatening complication of fulminant meningococcal sepsis. In 1993, my clinical course began with a proven meningococcal sepsis, which manifested, among other things, by the development of petechiae followed by purpura, consistent with the onset of a coagulation disorder. The sepsis rapidly progressed to acute circulatory shock and severe hemodynamic instability.
In the context of this sepsis, Waterhouse–Friderichsen syndrome developed, characterized by acute bilateral adrenal hemorrhage, leading to acute adrenal failure. Simultaneously, disseminated intravascular coagulation (DIC) occurred, resulting in thrombocytopenia and hemolysis. The thrombocytopenia led to petechiae, purpura, and other cutaneous hemorrhages, while the hemolysis involved the destruction of red blood cells.
As a consequence of shock and DIC, liver and kidney abnormalities developed, consistent with multiorgan dysfunction, resulting in a comatose state that lasted three days. Despite severe adrenal damage, I survived this phase without hormonal replacement therapy, which is clinically exceptional.
I explicitly did not experience uncomplicated bacterial meningitis with full recovery; rather, this was a severe and complex disease course involving meningitis/meningo-encephalitis, necessitating admission to an intensive care unit.
Despite the severity and complexity of my clinical course, I have for more than 32 years never received structured and appropriate follow-up care consistent with my medical history. At present, such follow-up care is still not being provided, partly as a result of inaccurate and incomplete medical records, whereby my citizen service number (BSN) has been linked to various systems and records without my knowledge or consent.
I am therefore taking action to have all my personal, medical, and administrative data corrected and, where necessary, removed, so that my records fully reflect the medical reality and appropriate follow-up care can finally be provided.
